{"id":1226,"date":"2024-08-12T16:14:57","date_gmt":"2024-08-12T15:14:57","guid":{"rendered":"https:\/\/oxfordhealth.nhs.uk\/research\/?page_id=1226"},"modified":"2026-08-20T11:27:58","modified_gmt":"2026-08-20T10:27:58","slug":"for-researchers-informing-research-participants-of-study-progress-and-results","status":"publish","type":"page","link":"https:\/\/oxfordhealth.nhs.uk\/research\/toolkit\/for-researchers-informing-research-participants-of-study-progress-and-results\/","title":{"rendered":"Informing research participants of study progress and results"},"content":{"rendered":"<blockquote><p><em>\u201cResearch is of no use unless it gets to the people who need to use it.\u201d &#8211; <\/em>Professor Chris Whitty, Chief Medical Advisor to the UK government.<\/p><\/blockquote>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-1447 aligncenter\" src=\"https:\/\/oxfordhealth.nhs.uk\/wp-content\/uploads\/sites\/43\/2024\/09\/3-300x150.png\" alt=\"\" width=\"1074\" height=\"537\" srcset=\"https:\/\/oxfordhealth.nhs.uk\/wp-content\/uploads\/sites\/43\/2024\/09\/3-300x150.png 300w, https:\/\/oxfordhealth.nhs.uk\/wp-content\/uploads\/sites\/43\/2024\/09\/3.png 600w\" sizes=\"auto, (max-width: 1074px) 100vw, 1074px\" \/><\/p>\n<p><span data-contrast=\"auto\">This\u202f<\/span><b><span data-contrast=\"auto\">toolkit<\/span><\/b><span data-contrast=\"auto\">\u202fis for researchers of Oxford Health sponsored studies.<\/span><span data-ccp-props=\"{}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Many research participants have highlighted the\u202f<\/span><b><span data-contrast=\"auto\">importance of keeping participants updated<\/span><\/b><span data-contrast=\"auto\">\u202fwith a study\u2019s progress and results.<\/span><span data-ccp-props=\"{}\">\u00a0<\/span><\/p>\n<ul>\n<li data-leveltext=\"\uf0b7\" data-font=\"Symbol\" data-listid=\"1\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559685&quot;:720,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Symbol&quot;,&quot;469769242&quot;:[8226],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0b7&quot;,&quot;469777815&quot;:&quot;multilevel&quot;}\" data-aria-posinset=\"1\" data-aria-level=\"1\"><span data-contrast=\"auto\">The NIHR\u2019s 2024-2025 Participant in Research Experience Survey (PRES) results highlighted: \u201cOne area that needs improvement is helping people understand how to get the results of a research study with 23% of adults and 20% of young people feeling that they did not know how to do this. Some people also felt they were not kept updated during a study, with 29% of adults and 24% of children and young people feeling they did not get enough updates from the study team\u201d. (accessed 11\/08\/2026\u00a0<\/span><a href=\"https:\/\/www.nihr.ac.uk\/about-us\/who-we-are\/reports-and-performance\/participant-in-research-experience-survey-2024-25\"><span data-contrast=\"none\">Participant in Research Experience Survey (PRES) | NIHR<\/span><\/a><span data-contrast=\"auto\">)<\/span><span data-ccp-props=\"{}\">\u00a0<\/span><\/li>\n<\/ul>\n<ul>\n<li data-leveltext=\"\uf0b7\" data-font=\"Symbol\" data-listid=\"1\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559685&quot;:720,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Symbol&quot;,&quot;469769242&quot;:[8226],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0b7&quot;,&quot;469777815&quot;:&quot;multilevel&quot;}\" data-aria-posinset=\"2\" data-aria-level=\"1\"><span data-contrast=\"auto\">Locally,\u00a0our participants are feeling better informed about their study progress compared to national\u00a0average but\u00a0remain\u00a0unsure about how to access their study results (NIHR PRES South Central Final report 2024-2025).<\/span><span data-ccp-props=\"{}\">\u00a0<\/span><\/li>\n<\/ul>\n<ul>\n<li data-leveltext=\"\uf0b7\" data-font=\"Symbol\" data-listid=\"1\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559685&quot;:720,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Symbol&quot;,&quot;469769242&quot;:[8226],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0b7&quot;,&quot;469777815&quot;:&quot;multilevel&quot;}\" data-aria-posinset=\"3\" data-aria-level=\"1\"><span data-contrast=\"auto\">Participants\u00a0have previously\u00a0reported that\u202f<\/span><b><span data-contrast=\"auto\">knowing when the research will be published<\/span><\/b><span data-contrast=\"auto\">\u202fand\u202f<\/span><b><span data-contrast=\"auto\">more information on the study findings<\/span><\/b><span data-contrast=\"auto\">\u202fcould\u00a0both\u00a0improve their experiences of research. This page suggests ways that researchers can keep participants informed.<\/span><span data-ccp-props=\"{}\">\u00a0<\/span><\/li>\n<\/ul>\n<p><span data-contrast=\"auto\">This toolkit includes internal resources and publicly available external resources, which have been included with the organisations\u2019 approvals. We hope they will be helpful.<\/span><span data-ccp-props=\"{}\">\u00a0<\/span><\/p>\n<details class=\"nhsuk-details nhsuk-expander\">\n                    <summary class=\"nhsuk-details__summary\">\n                        <span class=\"nhsuk-details__summary-text\">Updating participants throughout the study<\/span>\n                    <\/summary>\n                    <div class=\"nhsuk-details__text\">\n<p><span class=\"TextRun SCXW235733307 BCX8\" lang=\"EN-GB\" xml:lang=\"EN-GB\" data-contrast=\"auto\"><span class=\"NormalTextRun SCXW235733307 BCX8\">The NIHR has guidance on\u00a0<\/span><span class=\"NormalTextRun SCXW235733307 BCX8\">keeping in touch<\/span><span class=\"NormalTextRun SCXW235733307 BCX8\">\u00a0with participants about research studies.\u202f This includes suggestions for feedback events, webinars, results\u00a0<\/span><span class=\"NormalTextRun SCXW235733307 BCX8\">posters<\/span><span class=\"NormalTextRun SCXW235733307 BCX8\">\u00a0and social media:\u202f<\/span><\/span><a class=\"Hyperlink SCXW235733307 BCX8\" href=\"https:\/\/docs.google.com\/document\/d\/1MviCxIX--CrNb31YcGSkd7kVRHmW9fl5Koifsiiv7Lk\/edit\" target=\"_blank\" rel=\"noreferrer noopener\"><span class=\"TextRun Underlined SCXW235733307 BCX8\" lang=\"EN-GB\" xml:lang=\"EN-GB\" data-contrast=\"none\"><span class=\"NormalTextRun SCXW235733307 BCX8\" data-ccp-charstyle=\"Hyperlink\">How to keep in touch with participants about your study<\/span><\/span><\/a>.<br \/>\n<img loading=\"lazy\" decoding=\"async\" class=\"aligncenter wp-image-1914 size-full\" src=\"https:\/\/oxfordhealth.nhs.uk\/wp-content\/uploads\/sites\/43\/2026\/08\/NIHR-Supported-by-logo-600-x-300-px-1-e1786609142283.png\" alt=\"\" width=\"600\" height=\"90\" srcset=\"https:\/\/oxfordhealth.nhs.uk\/wp-content\/uploads\/sites\/43\/2026\/08\/NIHR-Supported-by-logo-600-x-300-px-1-e1786609142283.png 600w, https:\/\/oxfordhealth.nhs.uk\/wp-content\/uploads\/sites\/43\/2026\/08\/NIHR-Supported-by-logo-600-x-300-px-1-e1786609142283-300x45.png 300w\" sizes=\"auto, (max-width: 600px) 100vw, 600px\" \/><\/p>\n<p>&nbsp;<\/p>\n<p><span data-contrast=\"auto\">Parkinson\u2019s UK templates are relevant to\u202f<\/span><b><span data-contrast=\"auto\">all researchers<\/span><\/b><span data-contrast=\"auto\">\u202fand not just Parkinson\u2019s researchers and there is space to add your own logos on\u00a0all\u00a0these resources:\u202f<\/span><a href=\"https:\/\/www.parkinsons.org.uk\/research\/staying-connected-your-participants\"><span data-contrast=\"none\">Staying connected with your participants | Parkinson\u2019s UK\u202f(parkinsons.org.uk)<\/span><\/a><span data-ccp-props=\"{}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">You may find the following aspects of the\u202f<\/span><b><span data-contrast=\"auto\">toolkit\u202f<\/span><\/b><span data-contrast=\"auto\">particularly helpful:<\/span><span data-ccp-props=\"{}\">\u00a0<\/span><\/p>\n<ul>\n<li data-leveltext=\"\uf0b7\" data-font=\"Symbol\" data-listid=\"2\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559685&quot;:720,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Symbol&quot;,&quot;469769242&quot;:[8226],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0b7&quot;,&quot;469777815&quot;:&quot;multilevel&quot;}\" data-aria-posinset=\"1\" data-aria-level=\"1\"><span data-contrast=\"auto\">An\u202f<\/span><a href=\"https:\/\/view.officeapps.live.com\/op\/view.aspx?src=https%3A%2F%2Fwww.parkinsons.org.uk%2Fsites%2Fdefault%2Ffiles%2F2021-06%2FStaying%2520connected%2520-%2520end%2520of%2520recruitment%2520letter%2520template.docx&amp;wdOrigin=BROWSELINK\"><span data-contrast=\"none\">End of Recruitment Letter Template<\/span><\/a><span data-ccp-props=\"{}\">\u00a0<\/span><\/li>\n<\/ul>\n<ul>\n<li data-leveltext=\"\uf0b7\" data-font=\"Symbol\" data-listid=\"2\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559685&quot;:720,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Symbol&quot;,&quot;469769242&quot;:[8226],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0b7&quot;,&quot;469777815&quot;:&quot;multilevel&quot;}\" data-aria-posinset=\"2\" data-aria-level=\"1\"><span data-contrast=\"auto\">A letter template for informing participants about the end of study activity:\u202f<\/span><a href=\"https:\/\/view.officeapps.live.com\/op\/view.aspx?src=https%3A%2F%2Fwww.parkinsons.org.uk%2Fsites%2Fdefault%2Ffiles%2F2021-06%2FStaying%2520connected%2520-%2520last%2520active%2520visit%2520letter%2520template%2520%25281%2529.docx&amp;wdOrigin=BROWSELINK\"><span data-contrast=\"none\">Last Active Visit Letter Template<\/span><\/a><span data-ccp-props=\"{}\">\u00a0<\/span><\/li>\n<\/ul>\n<ul>\n<li data-leveltext=\"\uf0b7\" data-font=\"Symbol\" data-listid=\"2\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559685&quot;:720,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Symbol&quot;,&quot;469769242&quot;:[8226],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0b7&quot;,&quot;469777815&quot;:&quot;multilevel&quot;}\" data-aria-posinset=\"3\" data-aria-level=\"1\"><span data-contrast=\"auto\">A template for a short update to keep participants informed:\u202f<\/span><a href=\"https:\/\/www.parkinsons.org.uk\/sites\/default\/files\/2021-06\/Staying%20connected%20-%20short%20update%20template.pdf\"><span data-contrast=\"none\">Short Updates Template<\/span><\/a><span data-ccp-props=\"{}\">\u00a0<\/span><\/li>\n<\/ul>\n<ul>\n<li data-leveltext=\"\uf0b7\" data-font=\"Symbol\" data-listid=\"2\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559685&quot;:720,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Symbol&quot;,&quot;469769242&quot;:[8226],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0b7&quot;,&quot;469777815&quot;:&quot;multilevel&quot;}\" data-aria-posinset=\"4\" data-aria-level=\"1\"><span data-contrast=\"auto\">A project summary template, to give participants key details such as\u202f<\/span><b><span data-contrast=\"auto\">timelines\u202f<\/span><\/b><span data-contrast=\"auto\">and contacts:\u202f<\/span><a href=\"https:\/\/www.parkinsons.org.uk\/sites\/default\/files\/2021-06\/Staying%20connected%20-%20notecard%20template.pdf\"><span data-contrast=\"none\">Project Summary Details Notecard Template<\/span><\/a><span data-ccp-props=\"{}\">\u00a0<\/span><\/li>\n<\/ul>\n<ul>\n<li data-leveltext=\"\uf0b7\" data-font=\"Symbol\" data-listid=\"2\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559685&quot;:720,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Symbol&quot;,&quot;469769242&quot;:[8226],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0b7&quot;,&quot;469777815&quot;:&quot;multilevel&quot;}\" data-aria-posinset=\"5\" data-aria-level=\"1\"><span data-contrast=\"auto\">A newsletter template:\u202f<\/span><a href=\"https:\/\/www.parkinsons.org.uk\/sites\/default\/files\/2021-06\/Staying%20connected%20-%20newsletter%20template.pdf\"><span data-contrast=\"none\">Newsletter Template<\/span><\/a><\/li>\n<\/ul>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-1232 aligncenter\" src=\"https:\/\/oxfordhealth.nhs.uk\/wp-content\/uploads\/sites\/43\/2024\/05\/PUK_Logo_RGB_Strapline_NvCn-1-1-1-300x168.png\" alt=\"\" width=\"353\" height=\"198\" srcset=\"https:\/\/oxfordhealth.nhs.uk\/wp-content\/uploads\/sites\/43\/2024\/05\/PUK_Logo_RGB_Strapline_NvCn-1-1-1-300x168.png 300w, https:\/\/oxfordhealth.nhs.uk\/wp-content\/uploads\/sites\/43\/2024\/05\/PUK_Logo_RGB_Strapline_NvCn-1-1-1-1024x573.png 1024w, https:\/\/oxfordhealth.nhs.uk\/wp-content\/uploads\/sites\/43\/2024\/05\/PUK_Logo_RGB_Strapline_NvCn-1-1-1-768x430.png 768w, https:\/\/oxfordhealth.nhs.uk\/wp-content\/uploads\/sites\/43\/2024\/05\/PUK_Logo_RGB_Strapline_NvCn-1-1-1-1536x860.png 1536w, https:\/\/oxfordhealth.nhs.uk\/wp-content\/uploads\/sites\/43\/2024\/05\/PUK_Logo_RGB_Strapline_NvCn-1-1-1.png 1850w\" sizes=\"auto, (max-width: 353px) 100vw, 353px\" \/><\/p>\n<p><strong><span class=\"TextRun SCXW94944701 BCX8\" lang=\"EN-GB\" xml:lang=\"EN-GB\" data-contrast=\"auto\"><span class=\"NormalTextRun SCXW94944701 BCX8\">Please\u00a0<\/span><span class=\"NormalTextRun SCXW94944701 BCX8\">note<\/span><span class=\"NormalTextRun SCXW94944701 BCX8\">\u00a0some of this documentation may need\u202fapproval\u202fthrough your Research Ethics Committee prior to its use on your study and we recommend checking with them first or your local R&amp;D department.<\/span><\/span><span class=\"EOP Selected SCXW94944701 BCX8\" data-ccp-props=\"{}\">\u00a0<\/span><\/strong><\/p>\n<\/div>\n                <\/details>\n<details class=\"nhsuk-details nhsuk-expander\">\n                    <summary class=\"nhsuk-details__summary\">\n                        <span class=\"nhsuk-details__summary-text\">Resources for participants coming to the end of their participation<\/span>\n                    <\/summary>\n                    <div class=\"nhsuk-details__text\">\n<ul>\n<li><span class=\"TextRun SCXW158477103 BCX8\" lang=\"EN-GB\" xml:lang=\"EN-GB\" data-contrast=\"auto\"><span class=\"NormalTextRun SCXW158477103 BCX8\">Our local co-produced\u202f<\/span><\/span><a class=\"Hyperlink SCXW158477103 BCX8\" href=\"https:\/\/oxfordhealth.nhs.uk\/wp-content\/uploads\/sites\/44\/2024\/09\/OH-026.26-Research-and-Development-Whats-Next-After-Taking-Part-in-Research.pdf\" target=\"_blank\" rel=\"noreferrer noopener\"><span class=\"TextRun Underlined SCXW158477103 BCX8\" lang=\"EN-GB\" xml:lang=\"EN-GB\" data-contrast=\"none\"><span class=\"NormalTextRun SCXW158477103 BCX8\" data-ccp-charstyle=\"Hyperlink\">\u201cWhat\u2019s Next After Taking Part in Research?\u201d leaflet<\/span><\/span><\/a><span class=\"TextRun SCXW158477103 BCX8\" lang=\"EN-GB\" xml:lang=\"EN-GB\" data-contrast=\"auto\"><span class=\"NormalTextRun SCXW158477103 BCX8\">\u202ffor research supported by OHFT Research &amp; Development Department provides information about support for our research participants as they finish their research involvement.\u202f<\/span><\/span><a class=\"Hyperlink SCXW158477103 BCX8\" href=\"https:\/\/oxfordhealth.nhs.uk\/leaflets\/title\/whats-next-after-taking-part-in-research\/\" target=\"_blank\" rel=\"noreferrer noopener\"><span class=\"TextRun Underlined SCXW158477103 BCX8\" lang=\"EN-GB\" xml:lang=\"EN-GB\" data-contrast=\"none\"><span class=\"NormalTextRun SCXW158477103 BCX8\" data-ccp-charstyle=\"Hyperlink\">Accessible version of the leaflet available here.\u202f<\/span><\/span><\/a><span class=\"TextRun SCXW158477103 BCX8\" lang=\"EN-GB\" xml:lang=\"EN-GB\" data-contrast=\"auto\"><span class=\"NormalTextRun SCXW158477103 BCX8\">Other Trusts and research organisations who wish to reproduce this leaflet should first refer to the Oxford Health NHS Foundation Trust\u202f<\/span><\/span><a class=\"Hyperlink SCXW158477103 BCX8\" href=\"https:\/\/oxfordhealth.nhs.uk\/wp-content\/uploads\/sites\/43\/2025\/02\/Policy-for-reusing-our-leaflet-content.pdf\" target=\"_blank\" rel=\"noreferrer noopener\"><span class=\"TextRun Underlined SCXW158477103 BCX8\" lang=\"EN-GB\" xml:lang=\"EN-GB\" data-contrast=\"none\"><span class=\"NormalTextRun SCXW158477103 BCX8\" data-ccp-charstyle=\"Hyperlink\">Policy for reusing our leaflet content<\/span><\/span><\/a><span class=\"TextRun SCXW158477103 BCX8\" lang=\"EN-GB\" xml:lang=\"EN-GB\" data-contrast=\"auto\"><span class=\"NormalTextRun SCXW158477103 BCX8\">.<\/span><\/span><span class=\"EOP Selected SCXW158477103 BCX8\" data-ccp-props=\"{}\">\u00a0<\/span><\/li>\n<\/ul>\n<p><img loading=\"lazy\" decoding=\"async\" class=\" wp-image-1497 aligncenter\" src=\"https:\/\/oxfordhealth.nhs.uk\/wp-content\/uploads\/sites\/43\/2024\/10\/Leaftlet-for-researchers-toolkit-212x300.jpg\" alt=\"\" width=\"229\" height=\"324\" srcset=\"https:\/\/oxfordhealth.nhs.uk\/wp-content\/uploads\/sites\/43\/2024\/10\/Leaftlet-for-researchers-toolkit-212x300.jpg 212w, https:\/\/oxfordhealth.nhs.uk\/wp-content\/uploads\/sites\/43\/2024\/10\/Leaftlet-for-researchers-toolkit.jpg 388w\" sizes=\"auto, (max-width: 229px) 100vw, 229px\" \/><\/p>\n<ul>\n<li>NIHR Thank you card: <a href=\"https:\/\/drive.google.com\/file\/d\/16KLOILZBqPQbN5e3pwokRkriw--KPPiJ\/view\">NIHR Thank you card.<img loading=\"lazy\" decoding=\"async\" class=\" wp-image-1436 aligncenter\" src=\"https:\/\/oxfordhealth.nhs.uk\/wp-content\/uploads\/sites\/43\/2024\/09\/NIHR-Thank-You-card-300x213.png\" alt=\"\" width=\"282\" height=\"200\" srcset=\"https:\/\/oxfordhealth.nhs.uk\/wp-content\/uploads\/sites\/43\/2024\/09\/NIHR-Thank-You-card-300x213.png 300w, https:\/\/oxfordhealth.nhs.uk\/wp-content\/uploads\/sites\/43\/2024\/09\/NIHR-Thank-You-card-768x544.png 768w, https:\/\/oxfordhealth.nhs.uk\/wp-content\/uploads\/sites\/43\/2024\/09\/NIHR-Thank-You-card.png 960w\" sizes=\"auto, (max-width: 282px) 100vw, 282px\" \/><\/a><\/li>\n<\/ul>\n<\/div>\n                <\/details>\n<details class=\"nhsuk-details nhsuk-expander\">\n                    <summary class=\"nhsuk-details__summary\">\n                        <span class=\"nhsuk-details__summary-text\">Writing lay summaries<\/span>\n                    <\/summary>\n                    <div class=\"nhsuk-details__text\">\n<p><span data-contrast=\"auto\">If you are an Oxford Health researcher and have approval to\u00a0disseminate\u00a0your results, you can\u202f<\/span><b><span data-contrast=\"auto\">find<\/span><\/b><span data-contrast=\"auto\">\u202f<\/span><b><span data-contrast=\"auto\">guidance and training in writing lay summaries below<\/span><\/b><span data-contrast=\"auto\">:<\/span><span data-ccp-props=\"{}\">\u00a0<\/span><\/p>\n<ul>\n<li data-leveltext=\"\uf0b7\" data-font=\"Symbol\" data-listid=\"5\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559685&quot;:720,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Symbol&quot;,&quot;469769242&quot;:[8226],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0b7&quot;,&quot;469777815&quot;:&quot;multilevel&quot;}\" data-aria-posinset=\"1\" data-aria-level=\"1\"><b><span data-contrast=\"auto\">Health Research Authority:\u202f<\/span><\/b><a href=\"https:\/\/www.hra.nhs.uk\/planning-and-improving-research\/best-practice\/writing-plain-language-lay-summary-your-research-findings\/\"><span data-contrast=\"none\">Writing a plain language (lay) summary of your research findings<\/span><\/a><span data-ccp-props=\"{}\">\u00a0<\/span><\/li>\n<\/ul>\n<ul>\n<li data-leveltext=\"\uf0b7\" data-font=\"Symbol\" data-listid=\"5\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559685&quot;:720,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Symbol&quot;,&quot;469769242&quot;:[8226],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0b7&quot;,&quot;469777815&quot;:&quot;multilevel&quot;}\" data-aria-posinset=\"2\" data-aria-level=\"1\"><b><span data-contrast=\"auto\">NIHR Plain English Summaries guidance:<\/span><\/b><span data-contrast=\"auto\">\u202f<\/span><a href=\"https:\/\/www.nihr.ac.uk\/documents\/plain-english-summaries\/27363\"><span data-contrast=\"none\">Plain English summaries | NIHR<\/span><\/a><span data-ccp-props=\"{}\">\u00a0<\/span><\/li>\n<\/ul>\n<ul>\n<li data-leveltext=\"\uf0b7\" data-font=\"Symbol\" data-listid=\"5\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559685&quot;:720,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Symbol&quot;,&quot;469769242&quot;:[8226],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0b7&quot;,&quot;469777815&quot;:&quot;multilevel&quot;}\" data-aria-posinset=\"3\" data-aria-level=\"1\"><span data-contrast=\"auto\">The NIHR run\u202f<\/span><b><span data-contrast=\"auto\">\u201cWriting for the Public\u201d workshops<\/span><\/b><span data-contrast=\"auto\">\u202fcan be found on NIHR Learn:\u202f<\/span><a href=\"https:\/\/learn.nihr.ac.uk\/\"><span data-contrast=\"none\">NIHR Learn<\/span><\/a><span data-ccp-props=\"{}\">\u00a0<\/span><\/li>\n<\/ul>\n<ul>\n<li data-leveltext=\"\uf0b7\" data-font=\"Symbol\" data-listid=\"5\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559685&quot;:720,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Symbol&quot;,&quot;469769242&quot;:[8226],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0b7&quot;,&quot;469777815&quot;:&quot;multilevel&quot;}\" data-aria-posinset=\"4\" data-aria-level=\"1\"><b><span data-contrast=\"auto\">The Plain English Campaign:<\/span><\/b><span data-contrast=\"auto\">\u202f<\/span><a href=\"https:\/\/www.plainenglish.co.uk\/free-guides\"><span data-contrast=\"none\">Plain English free guides<\/span><\/a><span data-contrast=\"auto\">\u00a0<\/span><span data-ccp-props=\"{}\">\u00a0<\/span><\/li>\n<\/ul>\n<p><span data-contrast=\"auto\">You can also ask\u202f<\/span><b><span data-contrast=\"auto\">patient and public involvement (PPI)<\/span><\/b><span data-contrast=\"auto\">\u202f<\/span><b><span data-contrast=\"auto\">contributors<\/span><\/b><span data-contrast=\"auto\">\u202fto review lay summaries. The Engage group (PPI group at the NIHR Clinical Research Facility: Oxford Health) may be able to support with this or signpost you.\u202f Please email:\u202f<\/span><a href=\"mailto:oxfordhealth.crf@nhs.net\"><span data-contrast=\"none\">oxfordhealth.crf@nhs.net<\/span><\/a><span data-ccp-props=\"{}\">\u00a0<\/span><\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-1448 aligncenter\" src=\"https:\/\/oxfordhealth.nhs.uk\/wp-content\/uploads\/sites\/43\/2024\/09\/4-300x150.png\" alt=\"\" width=\"926\" height=\"463\" srcset=\"https:\/\/oxfordhealth.nhs.uk\/wp-content\/uploads\/sites\/43\/2024\/09\/4-300x150.png 300w, https:\/\/oxfordhealth.nhs.uk\/wp-content\/uploads\/sites\/43\/2024\/09\/4.png 600w\" sizes=\"auto, (max-width: 926px) 100vw, 926px\" \/><\/p>\n<\/div>\n                <\/details>\n<details class=\"nhsuk-details nhsuk-expander\">\n                    <summary class=\"nhsuk-details__summary\">\n                        <span class=\"nhsuk-details__summary-text\">Sharing lay summaries<\/span>\n                    <\/summary>\n                    <div class=\"nhsuk-details__text\">\n<p><span data-contrast=\"auto\">It is important to\u202f<\/span><b><span data-contrast=\"auto\">share lay summaries with the study participants.<\/span><\/b><span data-contrast=\"auto\">\u202fYou can also publish lay summaries on:<\/span><span data-ccp-props=\"{}\">\u00a0<\/span><\/p>\n<ul>\n<li data-leveltext=\"\uf0b7\" data-font=\"Symbol\" data-listid=\"6\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559685&quot;:720,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Symbol&quot;,&quot;469769242&quot;:[8226],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0b7&quot;,&quot;469777815&quot;:&quot;multilevel&quot;}\" data-aria-posinset=\"1\" data-aria-level=\"1\"><span data-contrast=\"auto\">Your\u202f<\/span><b><span data-contrast=\"auto\">study website<\/span><\/b><span data-ccp-props=\"{}\">\u00a0<\/span><\/li>\n<\/ul>\n<ul>\n<li data-leveltext=\"\uf0b7\" data-font=\"Symbol\" data-listid=\"6\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559685&quot;:720,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Symbol&quot;,&quot;469769242&quot;:[8226],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0b7&quot;,&quot;469777815&quot;:&quot;multilevel&quot;}\" data-aria-posinset=\"2\" data-aria-level=\"1\"><b><span data-contrast=\"auto\">Oxford Health Knowledge and Research Archive library<\/span><\/b><span data-contrast=\"auto\">:\u202f<\/span><a href=\"https:\/\/oxfordhealth.nhs.uk\/orka\/\"><span data-contrast=\"none\">ORKA (beta) &#8211; Oxford Health Research &amp; Knowledge Archive<\/span><\/a><span data-contrast=\"auto\">.\u00a0\u00a0Please email\u202f<\/span><a href=\"mailto:library.enquiries@oxfordhealth.nhs.uk\"><span data-contrast=\"none\">library.enquiries@oxfordhealth.nhs.uk<\/span><\/a><span data-contrast=\"auto\">\u202fif you would like your summary added to this results archive.<\/span><span data-ccp-props=\"{}\">\u00a0<\/span><\/li>\n<\/ul>\n<ul>\n<li data-leveltext=\"\uf0b7\" data-font=\"Symbol\" data-listid=\"6\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559685&quot;:720,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Symbol&quot;,&quot;469769242&quot;:[8226],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0b7&quot;,&quot;469777815&quot;:&quot;multilevel&quot;}\" data-aria-posinset=\"3\" data-aria-level=\"1\"><b><span data-contrast=\"auto\">Health Research Authority (HRA)<\/span><\/b><span data-contrast=\"auto\">\u202fresearch summary page by\u00a0submitting\u00a0the\u00a0twelve-month\u00a0final report\u202f<\/span><a href=\"https:\/\/www.hra.nhs.uk\/approvals-amendments\/managing-your-approval\/ending-your-project\/final-report-form\/\"><span data-contrast=\"none\">Submit your Final Report \u2013 Health Research Authority (hra.nhs.uk)<\/span><\/a><span data-contrast=\"auto\">. To view other\u00a0summaries,\u00a0visit\u202f<\/span><a href=\"https:\/\/www.hra.nhs.uk\/planning-and-improving-research\/application-summaries\/research-summaries\/\"><span data-contrast=\"none\">HRA \u2013 Research Summaries<\/span><\/a><span data-ccp-props=\"{}\">\u00a0<\/span><\/li>\n<\/ul>\n<ul>\n<li data-leveltext=\"\uf0b7\" data-font=\"Symbol\" data-listid=\"6\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559685&quot;:720,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Symbol&quot;,&quot;469769242&quot;:[8226],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0b7&quot;,&quot;469777815&quot;:&quot;multilevel&quot;}\" data-aria-posinset=\"4\" data-aria-level=\"1\"><a href=\"https:\/\/oxfordhealth.nhs.uk\/research\/themes\/research-results-and-keeping-in-touch\/previous-research\/\"><b><span data-contrast=\"none\">Oxford Health\u2019s Research &amp; Development Results Library<\/span><\/b><\/a><span data-contrast=\"auto\">\u202fwebpage: Please email\u202f<\/span><a href=\"mailto:research@oxfordhealth.nhs.uk\"><span data-contrast=\"none\">research@oxfordhealth.nhs.uk<\/span><\/a><span data-contrast=\"auto\">\u202fif you would like your summary adding here.<\/span><span data-ccp-props=\"{}\">\u00a0<\/span><\/li>\n<\/ul>\n<p><span data-contrast=\"auto\">For studies that are open for a long time, interim lay summaries should be prepared, if possible, at\u202f<\/span><b><span data-contrast=\"auto\">key timepoints<\/span><\/b><span data-contrast=\"auto\">\u202fto\u00a0keep participants updated on its progress.<\/span><span data-ccp-props=\"{}\">\u00a0<\/span><\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-1449 aligncenter\" src=\"https:\/\/oxfordhealth.nhs.uk\/wp-content\/uploads\/sites\/43\/2024\/09\/5-300x150.png\" alt=\"\" width=\"758\" height=\"379\" srcset=\"https:\/\/oxfordhealth.nhs.uk\/wp-content\/uploads\/sites\/43\/2024\/09\/5-300x150.png 300w, https:\/\/oxfordhealth.nhs.uk\/wp-content\/uploads\/sites\/43\/2024\/09\/5.png 600w\" sizes=\"auto, (max-width: 758px) 100vw, 758px\" \/><\/p>\n<\/div>\n                <\/details>\n<details class=\"nhsuk-details nhsuk-expander\">\n                    <summary class=\"nhsuk-details__summary\">\n                        <span class=\"nhsuk-details__summary-text\">Results dissemination and how to feedback your participants<\/span>\n                    <\/summary>\n                    <div class=\"nhsuk-details__text\">\n<p><span class=\"TextRun SCXW176594421 BCX8\" lang=\"EN-GB\" xml:lang=\"EN-GB\" data-contrast=\"auto\"><span class=\"NormalTextRun SCXW176594421 BCX8\">NIHR guidance on the dissemination of research findings<\/span><\/span><span class=\"TextRun SCXW176594421 BCX8\" lang=\"EN-GB\" xml:lang=\"EN-GB\" data-contrast=\"auto\"><span class=\"NormalTextRun SCXW176594421 BCX8\">\u202fcan be found here:\u202f<\/span><\/span><a class=\"Hyperlink SCXW176594421 BCX8\" href=\"https:\/\/www.nihr.ac.uk\/documents\/how-to-disseminate-your-research\/19951\" target=\"_blank\" rel=\"noreferrer noopener\"><span class=\"TextRun Underlined SCXW176594421 BCX8\" lang=\"EN-GB\" xml:lang=\"EN-GB\" data-contrast=\"none\"><span class=\"NormalTextRun SCXW176594421 BCX8\" data-ccp-charstyle=\"Hyperlink\">NIHR How to disseminate your research<\/span><\/span><\/a><span class=\"TextRun SCXW176594421 BCX8\" lang=\"EN-GB\" xml:lang=\"EN-GB\" data-contrast=\"auto\"><span class=\"NormalTextRun SCXW176594421 BCX8\">.<\/span><\/span><span class=\"EOP Selected SCXW176594421 BCX8\" data-ccp-props=\"{}\">\u00a0<\/span><\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\" wp-image-1457 aligncenter\" src=\"https:\/\/oxfordhealth.nhs.uk\/wp-content\/uploads\/sites\/43\/2024\/09\/Wendy-Debbie-Jemima-event-300x219.jpg\" alt=\"\" width=\"532\" height=\"388\" srcset=\"https:\/\/oxfordhealth.nhs.uk\/wp-content\/uploads\/sites\/43\/2024\/09\/Wendy-Debbie-Jemima-event-300x219.jpg 300w, https:\/\/oxfordhealth.nhs.uk\/wp-content\/uploads\/sites\/43\/2024\/09\/Wendy-Debbie-Jemima-event.jpg 688w\" sizes=\"auto, (max-width: 532px) 100vw, 532px\" \/><\/p>\n<p>Ideas could include:<\/p>\n<ul>\n<li>feedback events<\/li>\n<li>use of social media<\/li>\n<li>webinars<\/li>\n<li>posters<\/li>\n<\/ul>\n<p><strong>Other examples of good research dissemination methods can be found below:<\/strong><\/p>\n<p><b><span data-contrast=\"auto\">Other examples of good research dissemination methods can be found below:<\/span><\/b><span data-ccp-props=\"{}\">\u00a0<\/span><\/p>\n<p><a href=\"https:\/\/kmalliance.co.uk\/drawing-in-the-experts\/\"><span data-contrast=\"none\">The Knowledge Mobilisation Alliance<\/span><\/a><span data-ccp-props=\"{}\">\u00a0<\/span><\/p>\n<p><a href=\"https:\/\/bmjopen.bmj.com\/content\/12\/3\/e057019.full\"><span data-contrast=\"none\">RECAP project<\/span><\/a><span data-ccp-props=\"{}\">\u00a0<\/span><\/p>\n<p><a href=\"https:\/\/journals.plos.org\/plosmedicine\/article?id=10.1371\/journal.pmed.1003798\"><span data-contrast=\"none\">The Respect Study<\/span><\/a><span data-ccp-props=\"{}\">\u00a0<\/span><\/p>\n<p><a href=\"https:\/\/www.ncbi.nlm.nih.gov\/pmc\/articles\/PMC6803145\/\"><span data-contrast=\"none\">Frequency and format of clinical trial results dissemination<\/span><\/a><span data-ccp-props=\"{}\">\u00a0<\/span><\/p>\n<\/div>\n                <\/details>\n<p><b><span data-contrast=\"auto\">We hope this information is useful to you. If you have any feedback or if you know other useful tools that can be used to\u00a0disseminate\u00a0study findings, we would love to hear from you, please contact:<\/span><\/b><span data-ccp-props=\"{}\">\u00a0<\/span><\/p>\n<p><a href=\"mailto:jemima.littlejohns@oxfordhealth.nhs.uk\"><span data-contrast=\"none\">Jemima Littlejohns<\/span><\/a><span data-contrast=\"auto\">, OHFT Research Training and Development Manager.<\/span><\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"aligncenter wp-image-1915 size-full\" src=\"https:\/\/oxfordhealth.nhs.uk\/wp-content\/uploads\/sites\/43\/2026\/08\/NIHR-Supported-by-logo-600-x-300-px-e1786609205376.png\" alt=\"\" width=\"600\" height=\"116\" srcset=\"https:\/\/oxfordhealth.nhs.uk\/wp-content\/uploads\/sites\/43\/2026\/08\/NIHR-Supported-by-logo-600-x-300-px-e1786609205376.png 600w, https:\/\/oxfordhealth.nhs.uk\/wp-content\/uploads\/sites\/43\/2026\/08\/NIHR-Supported-by-logo-600-x-300-px-e1786609205376-300x58.png 300w\" sizes=\"auto, (max-width: 600px) 100vw, 600px\" \/><\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>\u201cResearch is of no use unless it gets to the people who need to use it.\u201d &#8211; Professor Chris Whitty, Chief Medical Advisor to the UK government. This\u202ftoolkit\u202fis for researchers of Oxford Health sponsored studies.\u00a0 Many research participants have highlighted the\u202fimportance of keeping participants updated\u202fwith a study\u2019s progress and results.\u00a0 The NIHR\u2019s 2024-2025 Participant in [&hellip;]<\/p>\n","protected":false},"author":506,"featured_media":0,"parent":10,"menu_order":9,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"class_list":["post-1226","page","type-page","status-publish","hentry"],"acf":[],"_links":{"self":[{"href":"https:\/\/oxfordhealth.nhs.uk\/research\/wp-json\/wp\/v2\/pages\/1226","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/oxfordhealth.nhs.uk\/research\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/oxfordhealth.nhs.uk\/research\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/oxfordhealth.nhs.uk\/research\/wp-json\/wp\/v2\/users\/506"}],"replies":[{"embeddable":true,"href":"https:\/\/oxfordhealth.nhs.uk\/research\/wp-json\/wp\/v2\/comments?post=1226"}],"version-history":[{"count":37,"href":"https:\/\/oxfordhealth.nhs.uk\/research\/wp-json\/wp\/v2\/pages\/1226\/revisions"}],"predecessor-version":[{"id":1920,"href":"https:\/\/oxfordhealth.nhs.uk\/research\/wp-json\/wp\/v2\/pages\/1226\/revisions\/1920"}],"up":[{"embeddable":true,"href":"https:\/\/oxfordhealth.nhs.uk\/research\/wp-json\/wp\/v2\/pages\/10"}],"wp:attachment":[{"href":"https:\/\/oxfordhealth.nhs.uk\/research\/wp-json\/wp\/v2\/media?parent=1226"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}